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Thread: July trip [to Disneyland] with sick daughter

  1. #1

    Lightbulb July trip [to Disneyland] with sick daughter

    hey,
    we're planning with my bro and sis living in cali with their teenage son a trip to DLR on the weekend 22-24 of july this year. i ll be working and will send our daughter in her early twenties which is a real disney trooper since age of 7. she is sick with some blood cancer and also had a few surgeries on her back and knee because of tumors . she is so excited about going but knowing her she wont say if she hurts or not feeling well with a ride (im thinking of Space Mountain and Indiana Jones) so we were wondering if u had some tips about how to plan their 2 days there. she will be in her own wheelchair all day long or mostly all day.
    i booked for a resort view upper room with concierge upgrade at the paradise pier... i also noticed to the reservation that she ll be with limited mobility to get around the bathroom and to the parks... even if i know that my bro and sis can handle it if needed.
    i just thought someone could have good advice about stuff for that trip


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  3. #2
    Happiness is that smile MammaSilva's Avatar
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    The parks are going to be insanely busy that weekend, it's the next weekend after the official/actual 50th birthday of the park. As for suggestions, she's going to be using her wheelchair, ask for one of the guests with disabilities guide books that are available at the gates or City Hall (in Disneyland, Guest Services at DCA),

    As for riding the rides...if she's been on Space or Indy then she knows that Indy is a rough ride ....no way yet to know how Space will be after the refurb but I can't imagine it will be less intense than before so that might be a consideration. The Indy queue is wheelchair accessible so her aunt & uncle won't have any problems there. I don't know if they're redoing the queue to make it accessible for Space but even is she has to use the alternate entrance be prepared for a LONG wait. The attraction has been down for over 2 years, everyone is going to be in line to ride and the wait for the wheelchair access will be even longer in some cases than a standby line would be since they can only have one group at a time on the attraction due to evacuation issues (that "might" change but I highly doubt it) my advice would be that if she is really determined to ride Space ....go there at rope drop and just plan to be patient.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  4. #3

    not sure about rides

    my bro will go and try space before she goes ride it... they wont do Indy again after the bad experience last year.... think they ll do big thunder, splash, pirates, haunted, small world, jungle cruise, fantasmic and mad tea... what do you think?
    any other tips about the hotel ride to the park? how is the monorail? when should they take the break back to hotel during the day?
    thanks alot
    David

     

  5. #4
    Happiness is that smile MammaSilva's Avatar
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    I always highly recommend a mid day break especially in the summer months....they can cool off make use of the pool, nap...just get refreshed for the evening since the parks are open late during the summer you don't "lose" out by taking that breather...for Haunted Mansion, the CM's can and will let your daughter stay in her chair if she tells them it's difficult for her to stand and she needs to stay in her chair, then when she goes down to the loading area they will take her thru the gate and actually stop the doom buggies to let her have ample time to load (onto specially designed doom buggies that make it so much easier for mobility impaired guests!) at the end she and the rest of her party will stay in the doom buggies, ride 'behind the scenes' (not a thrill here but just a note) then come back to the load area where they will stop the ride to allow her to transfer back to her chair, at which point they will escort them back to the stretching room and she and her party ride UP the stretching room to the entrance....

    All the other attractions you've mentioned should be fine, in fact there's one you didn't mention that I want to 'rave' about for guests that use a wheelchair.....POOH! I know a LOT Of people aren't wild about this new dark ride but the technology that they've incorporated for guests using a wheelchair just ROCKS....she will load onto a special car, then they use a 'turntable' type system to turn her to the front while she rides, then at the end they turn the 'table' again and offloading from the vehicle is amazingly wonderfully easy, they have a special ride vehicle in the new buzz ride that accomodates guests using wheelchairs as well.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  6. #5

    thanks alot

    i didnt know that about pooh and ill definetly tell my bro... last year she said she could stand at the haunted mansion and my bro had to carry her to the loading area and then the carpet up to the exit was down so it was very painful to get out... thanks for the info u really help
    do u know about the hotel they re going to stay at?
    David

     

  7. #6
    Happiness is that smile MammaSilva's Avatar
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    I've never stayed at the PP so I'm no help there but if you go to the MousePlanet main page and check the hotel review page it might have helpful information for you.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  8. #7
    Is it football season yet??
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    Awright! How funny, we just stayed at PP!

    Quote Originally Posted by dws_60
    i booked for a resort view upper room with concierge upgrade at the paradise pier... i also noticed to the reservation that she ll be with limited mobility to get around the bathroom and to the parks...

    My DH and I just stayed there about a month ago.. (wow time flies)..it was a wonderful hotel with a great staff...They were extremely helpful and so kind to our daughter! The hotel room was quite "roomy" if you will and the view was awesome into DCA.. (we were on the 13th Flr)...There were 2 "pools" as there was just a 1' deep wading pool and then the regular pool and a hot tub... (which might be nice on her muscles after a day at the parks?)
    From PP you can get to the main entrance of the parks by cutting through the lobby of Grand Californian and into DtD...or you can go through the back of the PP and into DH (by the movie theatre) and it will put you right by the monorail for DL..

    I do hope your daughter and family has a wonderful time!!


    Finding Nemo has forever changed the way that I say the word escape.

  9. #8
    Scrapbooking Disney Fan
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    I'll add a couple of things......
    First thing into DL have her go to Main Street Guest Relations. Explain to the CM what your daughter's issues are. They will then be able to tell you exactly what assistance they can offer you, like the Special Assistance Card. If your daughter gets a Special Assistance Card and will need it during her one month stay (you posted elsewhere that she's staying a month, right?) have her save the card and then on subsequent visits she can just go to Guest Relations with that pass to get an updated version.

    Also be sure to get the Guests with Disabilities book as mentioned but be prepared for some of the things in that book to be outdated. The most recent copy I have (I got it less than a month ago) is copyright 05/04 and it has a few things that are outdated. Even with the book ASK the CM at each attraction what to do. If you have the card there is a different procedure in many cases that the book doesn't mention. (Like the special boarding for HM that Mamma Silva mentioned- it is *not* in the book!! ) I believe that there are many things that the CMs can do when the guest needs help and lets them know. Probably the majority of guests CMs encounter use wheelchairs but transfer easily so they probably appreciate your communication with them that your daughter needs extra help as much as you will appreciate the extra help they can provide when it is needed.

    Buzz *also* has the special wheelchair loading ride car. We haven't used it but have been there when others have. What a ***COOL** thing that Disney is able to accomodate wheelchair bording in these newer rides!!!

    You might want to save the rides that might be jarring for your daughter until late in the day. That way if they are too much for her, she can head back to the hotel and take something for the pain or sleep it off without disrupting her day.

    "The next time you check into a 'deserted' hotel on the dark side of Hollywood, make sure you know just what kind of vacancy you're filling...or you may find yourself a permanent resident...of The Twilight Zone."

    My blog about family life and a few Disneyland tips.

  10. #9

    Cool thanks for the tips

    two things i didnt tell you about my daughter is :
    1) she is so ashamed to be sick and disabled she will try to look as normal and healthy as possible (like in Haunted mansion i mentionned before)... she hates the perspective to be spending the whole day in the wheelchair and asks all the time if my bro will let her stand or sit outside of the wheelchair for pictures...
    2) her condition brought up another sickness which is epilepsy... and she is so so afraid she can have one in public there even if she doesnt want to ruin their day, she will try and go on all the rides she can in the park...
    im so relieved to hear the PPH is good and welcoming... I appreciate any info you have to plan her visit there...
    David

     

  11. #10
    Happiness is that smile MammaSilva's Avatar
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    Dave....my daughter has multiple medical issues, a seizure disorder is one of them. The guide book does offer information on which rides have strobe effects that can impact some seizure disorders. I wouldn't recommend Roger Rabbits Cartoon spin in particular, both for the spinning and the multiple visual stim that can trigger a seizure but that's just my experience. As for your daughter wanting to look/act healthy normal....that's not the least bit unusual. I agree with jenniahart that she might want to save the 'rougher' rides like Big Thunder for just before a break from the parks, either mid day or late evening so that if it does tire her out she's not 'ruining' her day.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  12. #11

    thanks again

    mamma,
    did your daughter had trouble with that ride? her doc adviced she wears sunglasses for star tours and it went very well when she did last year... she also has asthma that is worsened by inflammatory anemia and her cancer... she tires very easily , as we talk i also talk with my bro and sis to tell them of the tips... ur all so helpful and nice... im really happy i registered here.
    last time we went to dlp, it went very badly as the cms were so mean and careless with us... one actually told her "u re old enough to walk to the wagon..." at btm!! it was a scandal and i wrote to the disney paris!
    i hope its better in dlr this summer because it really had her cold and very anxious about next summer wheelchair and all...
    David

     

  13. #12
    Happiness is that smile MammaSilva's Avatar
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    The effects are different than on Star Tours, my daughter can ride ST with no ill effects but the spinning and strobe effects in Roger Rabbitt aren't a good combination for anyone with a seizure disorder, some may be able to ride with no problem but it's just one of those attractions I chose not to risk unless it's the last ride of the day before we're going to go take a break for a few hours.

    I think you'll find that the CM's at DisneyLAND and California Adventure are really some of the BEST I've ever encountered. We live 8 hours away and I drive my daughter to the park at least once a year, most years several times a year because of how wonderful the parks are for guests with challenges like our daughters have.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  14. #13

    you sound like a very amazing mom yourself... how old is ur own baby?
    2 years ago we went to universal and she ignored the warnings at the walking thru the mummy and good my bro insisted to go with her and his son... because the bridge with the lites spinning around had her go right into a very ill pre seizure... he took her out as soon as he could but we didnt avoid the seizure... she doesnt understand what epilepsy is like really...
    i really appreciate all the info and tips you have... you seem really some disney experts
    David

     

  15. #14
    Happiness is that smile MammaSilva's Avatar
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    Thanks, my baby JUST turned 24 this month....here is a picture of her on her birthday trip the first weekend in April...we had the best time! A good friend made the trip with us and she said she never wants to go back to Disneyland without Brandy along, because she just brings the magic to life when she's there........you can clik on the little picture to make it bigger.

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  16. #15

    ur brandy and my julie look to be real precious treasures! dont u think? is there anyway we could talk off here about them? i dont want to ask u indescreet things on here... how do u upload that picture? id like to upload one of julie...
    thanks
    David

     

  17. #16
    Happiness is that smile MammaSilva's Avatar
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    David, check your PM box

    Life is too short to wake up with regrets ~So love the people who treat you right
    Forget about those who don't ~ Believe everything happens for a reason.
    If you get a chance, take it If it changes your life, let it ~Nobody said life would be easy,
    they just promised it would most likely be worth it~ remember, Sometimes Miracles Hide

  18. #17
    Scrapbooking Disney Fan
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    I understand that your daughter wants to look as normal and healthy as possible- that's normal! The new Buzz not only has the new wheelchair car but it also has the ability for the CM to slow or stop the ride. My husband and I use the slow the ride option and it's great for us!! Antoher cool thing about Buzz is that the people who need special access go through a blue door. No one knows *why* you are going through the door. Then the area where you load is far enough back from the regular loading area that the people in the que don't see you loading, all they see is that you are already in the ride when you enter the que area.

    I've had 99.9% GREAT experiences with the CMs at Disneyland and DCA as a disabled person. I feel that the norm is that they go out of their way to be helpful whenever they can. We have APs and we visit the park fairly often because we are lucky to be relatively local. I'm sure that the experience that Julie had will stick in her head but I truly feel that she doesn't have anything to be apprehensive about.

    If you'd like I could get this Guide Book for Guests with Disabilities to your brother. Send me a PM and let me know if that would help. We can get another one anytime we are at the park and I bet we almost have it memorized!!

    "The next time you check into a 'deserted' hotel on the dark side of Hollywood, make sure you know just what kind of vacancy you're filling...or you may find yourself a permanent resident...of The Twilight Zone."

    My blog about family life and a few Disneyland tips.

  19. #18
    Is it football season yet??
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    *total derailment*

    jenniahart: do you scrapbook through Creative Memories, or just do it on your own?

    *end of derailment!*



    Finding Nemo has forever changed the way that I say the word escape.

  20. #19

    any other tips? i got a very good idea with mammasilva ... but if anyone else has great ideas... they are so appreciated!
    thanks alot
    David

     

  21. #20
    Scrapbooking Disney Fan
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    I use CM books and CM is what got me started almost 10 years ago!! However, I've strayed from the pristine CM scrapbooking style over the years. I was the original owner/ founder of scrapbooking.com I mainly hang out at scrapbooking websites at least until I found MousePad!!

    "The next time you check into a 'deserted' hotel on the dark side of Hollywood, make sure you know just what kind of vacancy you're filling...or you may find yourself a permanent resident...of The Twilight Zone."

    My blog about family life and a few Disneyland tips.

  22. #21

    well, now the trip is all booked. Thanks for all the advice... Daughter is still very anxious about spending her days there in a wheelchair, she is in fustration phase now I think. Do Disney Dollars work also for food?
    Thanks
    David

     

  23. #22

    I really advise that your daughter go to guest relations because of her circumstances they may give her a GAC. I know that with any type of cancer comes fatigue and to maximize her time in the park it may require her to get a alternate route stamp that will enable her to bypass the normal que. These types of passes are normal given to children with autism but they do this on a case by case bases. You also may want to call the park the day before she goes and talk to someone about her medical conditions and they would have it ready for her when she comes in so she does not have to explain anything in front of other guest in guest relations.
    Also because she has a seizure disorder it may be dangerous for her to be in a normal que if she has one so they may give it to her for that reason. These type of Passes are now given out if you are a danger to yourself or others while in line.
    I just think she would enjoy her time in the park more if she did not have to stress about having a seizure while she is in a que. You may want to talk to her about this and get more information if she agrees to it.
    Toursbabe

    There is no such thing as too much Disney!

    Toursbabes MySpace

  24. #23

    Toursbabe, thanks for those tips, how do we call guest relations? there is someone on the forum who told me to say she has bad seizures to get that pass. Problem is she is very very ashamed of her condition and of that seizure disorder, so I guess i ll have her uncle to tell them. cancer and fatigue are not good reasons enough to get the pass but bad seizure is... even if she doesn't have seizure everyday, thanks God!
    Thanks for your advice
    David

     

  25. #24
    Quote Originally Posted by dws_60
    Toursbabe, thanks for those tips, how do we call guest relations? there is someone on the forum who told me to say she has bad seizures to get that pass. Problem is she is very very ashamed of her condition and of that seizure disorder, so I guess i ll have her uncle to tell them. cancer and fatigue are not good reasons enough to get the pass but bad seizure is... even if she doesn't have seizure everyday, thanks God!
    Thanks for your advice
    David
    I PMed you the number and information
    (((((((((((((((hugs)))))))))))))) Toursbabe
    There is no such thing as too much Disney!

    Toursbabes MySpace

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